Michael Clancy - soon he won’t be able to hold his precious little grandson due to Motor Neurone Disease.
Michael Clancy is a 59 year old Munster Rugby supporter from Limerick (but we won't hold that against him), he has refereed many of the country’s top players down through the years, he’s a father and grandfather. Recently his life changed for ever when he was diagnosed with Motor Neurone Disease (MND).
Michael is one of hundreds living with the illness across Ireland and like many other patients, he initially tried to hide the fact that his grip was failing before his deteriorating speech prompted him to seek help.
“My sisters were worried I was drinking as I had started to slur my words!” he said.
“It took months of tests but eventually I was told I have MND. I spent the next four days just driving around with tears down my face. I had no idea how me and my family were going to cope.”
Michael has decided to share his story about living with this terminal disease in the hope that greater awareness will raise vital funds for those living with this degenerative and debilitating condition, which has a devastating effect on patients.
“This disease has affected my hands so much soon I won’t be able to hold my precious little grandson Archie. Soon he won’t be able to hear me speak,” said Michael.
To help support Michael and the MND Awareness month, the Irish Motor Neurone Disease Association wants people to Drink Tea for MND this June.
CEO Aisling Farrell said “We are so grateful to all the people who host tea mornings every year, because they help provide vital funds that go straight towards helping Michael and all our other patients.
“We are also grateful for the support of SuperValu and their network of stores across Ireland, who are providing us with the all-important tea and biscuits. So let’s all raise a cuppa and share the stories of over 360 families right across Ireland affected by this disease”.
To organise Drink Tea for MND event during June, people are asked to email firstname.lastname@example.org or Freefone 1800 403 403 to receive their Supervalu sponsored Tea pack.
If you can’t organise a tea day, they can make a tea donation just Text MND to 50300 and donate €2. (Some network providers charge VAT, meaning a minimum of €1.63 will go to IMNDA. Service Provider LIKECHARITY 0766805278)
For more visit www.imnda.ie